Conditions / Genetic

mucopolysaccharidosis Ih

info · Genetic · ICD-10: E76.01

A mucopolysaccharidosis I characterized by a severe phenotype that includes dysostosis multiplex, cognitive impairment, heart disease, respiratory problems, corneal clouding, hepatosplenomegaly, coarse facies and reduced life expectancy that has_material_basis

A mucopolysaccharidosis I characterized by a severe phenotype that includes dysostosis multiplex, cognitive impairment, heart disease, respiratory problems, corneal clouding, hepatosplenomegaly, coarse facies and reduced life expectancy that has_material_basis_in homozygous or compound heterozygous mutation in the IDUA gene on chromosome 4p16.3.

Signs and symptoms

  • Diminished tissue alpha-L-iduronidase activity
  • Coarse facial features
  • Thick vermilion border
  • Hypertelorism
  • Macroglossia
  • Bilateral ptosis
  • Cranial hyperostosis
  • Joint stiffness
  • Calvarial hyperostosis
  • Umbilical hernia

Medications that may treat it

laronidase

Also known as: Dysostosis multiplex syndrome; Hurler disease MPS type 1H; Hurler-Pfaundler syndrome; L-iduronidase deficiency, Hurler type; MPS1-H